This was written and happened to ME.
It was decided: Wednesday would be the day. I’ve kept count; it will be #77, another nightmare procedure producing nil results and I’m once again pessimistic. I have to keep going, plodding along, slowly – ever so slowly to somehow reach the top of the mountain. I’ve lost my faith in ECT, including most of my long-term memory, but what else is there, what else to do? I should be fighting this but frankly I sometimes feel “what’s the point to it all”.
I take a seat in the TV area alone, starting to float into a point of peace. Strangely, I look forward to “going under” for these ECT’s, it’s almost indescribable; almost letting go of your whole being and existing in serene, tranquil waters. That is where I desire to stay – please let me stay – I don’t want to return – I hate coming back. But I always awaken. I begin to sob. I’ve lost so much…my memory…my life. Why am I doing this, why am I going for #77? The doctors, could they have endured this many on themselves? I think not.
Tuesday: 10:00 p.m., I am once again reminded nothing to eat or drink after midnight before ECT tomorrow. This helps to prevent vomiting during the procedure. Also, I am to pee right before the procedure as to prevent ‘accidents’.
Wednesday: 8:00 a.m., A fitful sleep last night, awake at different intervals praying that I will not wake up from the anesthetic tomorrow.
Nurse Anne pops her head in my room, stating I will be patient #2 going for ECT on the ward, which means an additional one hour delay. I lay back on messed up sheets. I am a tad nervous, even though I can recite this procedure in my sleep. Ironic how life is: I am nervous of the procedure, yet hope for my life to terminate. Bewildering, painful thoughts.
The time has come.
The gurney is waiting outside of my room and I hoist myself as gracefully as I am able to onto it. A friendly porter arrives, introduces himself as Allan and makes sure the top sheet is tucked in around me, also equipped with my med chart. My hands tightly grasp the metal rails of the gurney, and eyes take in the bright florescent hallway lights as we make our ride swiftly down the long corridor. I become confused and wonder if the lights are moving or am I? Into the elevator, floor number two is pressed, four floors to go down, a few people waiting, glancing down at me.
Floor number two, a long gurney ride to the procedure room; my doctor, some technicians and nurses are waiting for me. I feel at this point, yelling, “this is enough, I’ve had it”, but I don’t. An IV is started. Not an easy process, due to veins that do not cooperate and only the left arm seems to bring any sort of results. Ouch! This nurse is not gentle and insists on trying twice now on the backside of my hand. Finally, an IV is started – phew! Next comes the sensors for recording brain activity; they are placed on the forehead; other sensors are placed on the chest for heart monitoring with the regular BP cuff around the arm. Seems as if I am all wrapped up in wires. The ECT procedure itself is painless.
The general anesthesia is given and I am asked to count backwards from 100. This is the part where I fall gently backwards off a cliff in my mind, into a world where life is no longer filled with melancholy and suffering. I would give anything to remain in this place; knowing it’s not reality. Asking, is a life filled with the affects of bipolar disorder and depression reality?
After the 100 countdown – as they say: I am in their hands.
Eyes open. I am still alive. Mixed feelings – relief/sadness. Feels as if I was asleep forever, but assured only 10-15 minutes by the nurse. This time I am spared a headache, but sometimes that has come about later on in the day. I am wheeled back to my room and sleep until almost lunchtime. We’ll see if this ECT does the trick.
Mom later visits me and is shocked, stating she is looking into black, vacant eyes.
Discouraged, yet not surprised, #77 had no positive effect on my depression.
Footnote:
People have often asked why I would have granted so many ECT’s. A logical question, and pretty much none of their business, however, unless you were existing in my shoes and continually being reassured that this is the only treatment left for my medication resistant depression, and then what option did I have?
An example I use is: If I were a cancer patient, who had experienced many chemo treatments, wasn’t showing any improvement but still encouraged by doctors to continue – would I carry on? In all probability, yes.
In retrospect, I should have fought more, stood up for myself – but I was just too ill. Depression claimed my thought processes, self-confidence and self-esteem to stand up to doctors and ask questions. Family members should have probed also, however, in defense of them; they thought the doctors knew what was best.
My last ECT was in 2002.
Disclaimer:
ECT has been beneficial to many people. Don’t be dissuaded by my experiences.
~~~~~~
ECT is effective in about 80-90% of people who have found anti-depressants ineffective. Its beneficial effects often aren’t immediate. ECT treatments are given three times a week, usually for two to four weeks. The total number of treatments rarely exceeds 20.




Posted by Cafe dog on June 16, 2007 at 10:21 pm
Boy, I can feel the sadness well up in me when I read this, I’ve friends who’ve been “medication resistant” and have gone for ECT. and they have had the same results.
As MH consumer I wince at saying “hang in there” its sounds patronizing as hell.
I Know of three Bipolars who were medication resistsant, It turns out the wasn’t
quite true. The body changes and perhaps the mind changes too, and at a later point in their lives, all three at different points, they responded well to medications, one of which to a med that failed before.
This is really simplifying. MH can be such a massive complexity.
But I will leave with the my patronizing-sounding remark, knowing from from expierience that luck will bounce your way at somepoint.
Hang in there C79.
Posted by cherished79 on June 17, 2007 at 8:37 am
Actually, luck did bounce my way after ECT #77, and not after the whole ECT experience, but after striking gold in finding a psychiatrist who knew what the hell he was was doing. That’s right, the numer count went up to #77. Finally, I did respond to medications that were right for me, so basically all of this time, this ECT was completely a waste of time for me and my mind. Totally redudant and thanks to these bozos, as stated in my article, I lost the better part of my long-term memory due to these treatments.
Yes, ECT has worked well on medication resistant patients, however, how well? Please, anyone out there, and I’m not on a protest against ECT, but ask questions before leaping.
This is your brain you are playing with.
Posted by thememoryartist on July 10, 2007 at 10:49 am
cherished,
Thanks for directing me to this post. I’m sure there are many others out there who’ve gone through and continue to go through much the same thing. It angers and saddens me to hear how careless these docs are to continue with ECT even when it’s not helping. I’m glad that you’ve found some relief with medications. I often think those people who are truly “resistant” to meds and ECT are not really resistant at all, but merely being inappropriately treatment for their inaccurate diagnostic labels.
Do you mind if I put a direct link to this article in with your comment on my blog? I think it adds great value to the discussion.
Posted by cherished79 on July 10, 2007 at 11:26 am
I would be most pleased. The purpose of my article was to pretty much educate, and if only to save one or five or ten people from signing a consent form to ECT, before they knew what they were getting into, then it was worth it.
Posted by miquie's crew on July 12, 2007 at 8:34 pm
i can totally relate to that. thank you for sharing for i never remember … my memory is shot from the ECTs i’ve had too.
i came to your site through ‘thememoryartist’ site and i am just wanting to tell you that i am going to put you on my blogroll and i am also going to subscribe to your blog.
thank you for what you have written and we hope to get to know you better.
Posted by cherished79 on July 12, 2007 at 8:51 pm
Thank you so much for your comments. I’m so happy to meet others, however, sorry it has to be on a ECT sour note.
I’d say that ECT pretty much ruined a big part of me. Small eg. I had to relearn the computer all over again – and I used to teach it long, long ago!! Sad really, and this all could have been avoided. I grew tired of baby steps, and grew tired of people saying “baby steps”. I took giant steps, and I am now on my feet. So just goes to show you. But when you’re 40, and you gotta start all over again, and you forget everything pre-40 it’s freakin frustrating.
The memory is slowly coming back. But, I can still walk through a mall, and if someone stopped me to say hello, I wouldn’t know who the hell they were!
Posted by markps2 on July 13, 2007 at 5:31 pm
Cherished79 why do you feel it necessary to promote a balanced view of ECT?
You think ETC necessary for the extreem case, such as catatonia and the like?
Do you ever ask how the person became catatonic?
Does it spontaniously happen or just in a locked ward?
Posted by cherished79 on July 13, 2007 at 5:49 pm
I am a little unclear of your comment. For me and some fellow patients, I feel ECT was NOT necessary as treatment. I was drug-resistant and this was the way to go with me. It darn near ruined my life.
Catatonic? I am not a psychiatrist – don’t know much about this.
Locked ward. Yes, was in a locked ward many times and given ECT.
My article gives MY dark side, but other people have been helped by ECT, and although I loathe this method of treatment, they have their views too.
Posted by markps2 on July 14, 2007 at 6:20 am
Hymes wrote a better explination of what I’m thinking, at writhsafely comments.
http://writhesafely.wordpress.com/2007/07/13/ill-listen-to-my-heart/#comments
“Yes, you’re catatonic, read this closely spaced two page consent form listing the risks in 5 minutes and sign it, that’s informed consent. Or, do the ECT or we will keep you in this snakepit of a hospital even longer-that’s informed consent. Or best of all, do the ECT or you will die of suicide, really good informed consent.”
Depression is not a chemical imbalance, (there are no lab test for depression chemicals) so “drug resistant” diagnosis can’t really apply.
All psych wards are locked wards, this goes to Hymes “we will keep you”
I was just suggesting that psychiatric treatment is the thing that is making people worse, then in need of ECT a flaw in the logic of the necessity of ECT.
I was just wondering of your decision and judgement of the necessity to speak of those in favour of ECT.
Posted by Cafe dog on July 14, 2007 at 12:42 pm
I’ve never expierienced ECT but I will pass along some hear- say.
From friends who have had it, this seems to be the prevailent theme:
in unipolar depression ECT has a high percentage of success.
Bipolar 2 have moderate-high percantage of success.
but with consumers with Anxiety problems, schizo problems
or paranoia problems the procedure is not very effective
and sometimes triggers confusion and aggrivates symptoms further.
one friends says that the immediate short term memory loss
after the procedures caused him to be paranoid and anxious
and the whole ordeal was a …
more than usatifying.
Cherished ,I think you have been responsible in pointing out that some have had success with ECT even though you haven’t.
Good luck markps2 on your new wordpressblog, it is always great to have another Mental Health voice here!
Posted by cherished79 on July 14, 2007 at 5:45 pm
Yes, and I just want to make that clear. I did not have success with ECT. I do not believe in it, but for some people, you are right, it has made a difference.
This treatment in my opinion is barbaric, as in my case, instead of spending a bit more time with me, listening to my ‘complaints’ of black depression – I was thrown to the wolves of ECT. I know I was drug resistant – but 77 ECT’s later – and “she ‘aint any better”. Hmmm…if I was a pdoc I would be scratching my head, and also bowing my head in embarrassment. But then again…who am I kidding – these pdocs don’t care. Sign them in….sign them out.
Sorry, for black, muddy depression – ECT just isn’t the answer.
Posted by markps2 on July 14, 2007 at 6:01 pm
Thanks Cafe Dog for defining cherished79 actions that I was puzzled at.
“being responsible”
“I think you have been responsible in pointing out that some have had success with ECT even though you haven’t.”{Cafe Dog}
Posted by cherished79 on July 14, 2007 at 6:17 pm
Thanks markps and Cafe Dog – I welcome your comments always.
Posted by fattoush on March 24, 2009 at 7:25 pm
I’ve had 8 sessions of ECT and canceled my 9th. My psychiatrist recommended ECT for a typical “treatment resistant depressed.” I did some research and was encouraged. I also liked the doctor who would do it. What interfered with what I believe was a successful treatment were headaches. I would wake up with a headache and it would not go away until I was put under at my next session. Chronic pain would sabotage any treatment. I never quite understood what caused these headaches. I was frustrated at the ECT doctor being puzzled by my chronic headaches. He acted like why would he know? It was very unlikely for ECT to cause headaches that don’t respond to triptans or pain-killers. At least, though, he did not insist on my getting more treatments. He did not want me to be getting a treatment while I was in pain to begin with. Now, if I could just break through these headaches, I might be able to know what, if anything, ECT accomplished.
Posted by cherished79 on March 30, 2009 at 6:11 pm
My feelings about ECT’s are not positive ones, and I sure remember the headaches. I am a migraine sufferer so always thought this was the reason, also thought maybe it was the anesthetic.
Posted by cherished79 on April 6, 2009 at 7:29 am
Thank you for your comment. Headaches, headaches, headaches. I think there were only 3 or 4 times I did NOT wake up without a headache. Some of them would last all through the rest of day after ECT and into the morning after. For me I thought it was the anaesthetic.